A Race Against Time to save our 3-year-old son Gurmoh

He still dances to Baby Shark. He still drives his toy fire truck. He still has no idea what is coming for him.

His name is Gurmoh. He is three years old. And he is the only known case of his rare genetic disease in all of Canada.

Gurmoh has Spastic Paraplegia a progressive neurodegenerative condition caused by a de novo mutation that appeared in him alone. Neither parent carries it. It came from nowhere. And it is taking everything.

Right now Gurmoh struggles on stairs and uneven ground. He attends preschool. He makes friends easily. He is joyful and bright and completely unaware of what this disease intends to do to his small, precious body.

Without treatment, the road ahead for Gurmoh is devastating. The disease will steal his ability to walk. Then eat. Then speak. It will bring painful muscle stiffness, paralysis, and cognitive decline. It will take a little boy who dreams of being a firefighter and leave him unable to move independently.

And it will do this slowly. Progressively. Irreversibly.

Every single day that passes without treatment Gurmoh's nerves are dying. And those nerves cannot come back.

His family spends $6,000 to $8,000 every month on therapies, equipment, and specialized treatment travel. They are giving everything. But they cannot fund a gene therapy alone.

You can be part of the reason Gurmoh gets to grow up.

Donate today. Share this story until it reaches someone who can help. Because somewhere out there is the donation that tips Gurmoh's future from impossible to inevitable.